KINewsYour family's source for disability resources
March 2010 - Vol 2, Issue 3
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What do YOU want to share?
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Got an article, website, or announcement you'd like to see included in the next KINews? Tell our KINews Editor Sherri Coles about it at familysupport@aed.org. Be sure to include a link to the article or website. |
FOR YOUR ENJOYMENT.....
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The artwork images in this newsletter have been generously contributed by Art Enables: Outsider Art Inside the Beltway, a studio and gallery for emerging artists with developmental and/or mental disabilities in the Washington, DC, area.
Artists receive 60% of revenue from sales of their work. The balance goes to cover framing and presentation costs. Art Enables generates no operating funds from sales.
Click on the image or the title to find it in the online store for purchase.
Click the name of the artist to learn more about him or her.
Learn More about Art Enables.
See more artwork in the online store.
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Greetings,
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Before we get into this issue we'd like to share an important announcement from the Administration on Developmental Disabilities, ADD, of the U.S. Department of Health and Human Services, HHS, which funds the Family Support Center on Disabilities: Knowledge & Involvement Network (KIN). Sharon Lewis will be joining the Administration on Children and Families as Commissioner of ADD. She has extensive experience as a disability advocate, and has worked as the Senior Disability Policy Advisor to the U.S. House Committee on Education and Labor Chairman, George Miller since 2007. She is the parent of 3 daughters, one of who has an intellectual disability. Click the following link and scroll down to learn more about her background: http://www.oregonmegaconference.org/keynote.htmlAnd now to the newsletter..... ------------------------------------------------------------------------------------------- This issue of KINews is focused on rural communities, families, and initiatives. This is not a small focus. A 2005 report describes Rural America like this: 3,444,930 square miles; more than 97% of the total U.S. land mass; 21% of the total U.S. population; 59,061,367 people of whom 10,852,330 have a disability.(Research and Training Center on Disability in Rural Communities) We present an array of resources and articles to enhance services for individuals with disabilities, their families and the rural communities in which they live. |
FAMILY SUPPORTS
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All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Community Services Locator Whether you live in a rural setting, a big urban area, or somewhere in-between, this guide from the Maternal and Child Health Library at Georgetown University will help you locate community services for things such as family support, parenting, health and wellness, financial issues, special education, and more.
Benefits for Children with Disabilities What social security benefits are available for qualifying children with disabilities? And how do they qualify? Find out that and more from the booklet from the Social Security Administration. This booklet is also available in Spanish.
New "Twist" in Law Makes It Easier to Save on Prescription Costs With Medicare You or your family may be able to get extra help with the cost of prescription drugs. This brochure from the Social Security Administration will tell you more.
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COMMUNITY SUPPORTS
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All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Accessible Transportation in Rural Areas Don't have accessible transportation in your rural area? This Project Action Resource Sheet gives ideas for options such as Coordinated Systems, Volunteer Systems, Voucher Systems, and Flex Routes. They also list resources and related organizations.
State Benefits What benefits for low-income families are available in your state? You can find out here on the Gov Benefits website.
Project C3 This project in Minnesota connects individuals with disabilities, their families, employers and professionals to career and community resources in their community. They also have information on fun things to do, health, education, family helps, community living and more. Wouldn't it be great to have one in your state?
The Inclusion Driver Strategy: Assisting People with Disabilities Living in Rural Areas in Finding Personal Transportation The name is a mouthful, but this 44-page document is full of ideas, sample forms and funding sources. It explains how personal transportation can work in your area. Definitely worth a look for someone who wants to help make transportation available in their rural area.
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DISABILITIES
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All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Statewide Autism Council Proposed A state legislator in New York has introduced legislation to form a state autism council to create resource centers around the state, including rural areas. The resource centers would provide information to family members and individuals with autism about education, supports and services, treatment, and financial help for caregivers. Find out more from this article in the Times Union.
Tax Help for People with Disabilities This government site has information on how to get tax help if you or a member of your family has a disability and is paying taxes. It also has a page that helps you find a local Taxpayer Assistance Center.
Asperger's Officially Placed Inside Autism Spectrum Read or listen to this article from NPR's John Hamilton about the authors of the Manual of Psychiatric Disorders decision to eliminate Asperger's as a separate condition, and instead include it as part of Autism Spectrum Disorders. It talks about some of the pros and cons and also has links to other stories about Asperger's and Autism.
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HEALTH & MENTAL HEALTH
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All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
For Severely Ill Children, A Dearth of Doctors There is a major shortage of pediatric specialists, and one way that some areas are helping address this problem in rural and under-served areas is through Tele Medicine and Mobile Vans. Read about it in this Wall Street Journal article.
Major Rural Organizations and Agencies This resource list has lots of information on health and human services and lists specialized organizations in rural areas.
EPSDT Program Have you heard of the Early and Periodic Screening, Diagnosis and Treatment (EPSDT) Program? It is a program for young children who receive Medicaid and it provides health care services and monitors developmental stages to assure a healthy start in life.
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| ASSISTIVE TECHNOLOGY |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Assistive Technology and Rural Life
ABLE Tech is a program in Oklahoma that helps individuals with disabilities living in rural settings access technology. They even have a loan program so devices can be tested before purchasing.Telecommunications and Technology Policy InitiativeThe mission of the Telecommunications and Technology Policy Initiative (TTPI) is to ensure that all technology products and services are designed with users who have disabilities in mind. Find out more here. |
| LEGAL & LEGISLATION |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
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LIFE SKILLS
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All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Tribune Photo/Larry Beckner From left, Tiffany Johnson, Edwin Keen and Isaiah Hill work a store front at East Middle School after classes Tuesday afternoon. The store helps the students with math and social skills. East Middle School Students Keep Stores Running
Students with disabilities are learning money, social and vocational skills at this Montana school by running the student stores. This could work well in rural, urban or suburban areas. Click the title above to read the article from the Great Falls Tribune. What is Self-Determination?You've been hearing a lot about it, but have you ever wondered just what self-determination is? It's all about choice-the freedom to make choices about your own life. The homepage of the Center for Self-Determination has some articles that explain more about it. |
| HOUSING |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
USDA Rural Development Housing and Community Facilities Program Did you know that there is a website on housing for individuals with disabilities who live in rural areas? Look here to learn more.
Housing for Persons with Disabilities in Rural Areas This article discusses the problems facing individuals with disabilities in finding accessible and affordable housing in rural areas, and well as listing resources and programs.
National Legal Resource Center Website The US Department of Health and Human Services has launched a new website that provides legal support to advocates for seniors. They provide resources on legal issues facing seniors who want to live independently in their homes and communities.
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| EDUCATION |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Mom of Special Needs Son Gets Dream Job Mom in small Ohio town gets job with the school district, through ARRA money, as the Family Liaison. Laura Marino has a lot to offer both families and the school, through her experiences with her son who has autism. Would this help families in your area? Find out more in this article from the News-Herald.
Going To College Have you seen the website Going-to-College.org? They have lots of information and resources for teens with disabilities who want to go to college. It is interactive and features real college students with disabilities. There is also a section for parents and school personnel.
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| EMPLOYMENT |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Microenterprise Works What is microenterprise, and what does it have to do with rural folks? Most small businesses are in rural America. Microenterprise is a way to get financial help and advice for starting your own business.
What You Can Do Campaign Check out this great website, which is a collaboration to increase employment of individuals with disabilities. The website has sections for employers, families and educators, and youth and adults with disabilities. It also has an outreach toolkit, a library of Public Service Announcements, and a place for people with disabilities to tell what they CAN do.
The Ultimate Non-Profit Job Guide Job Boards are a popular way to search for employment. This webpage lists 97 non-profit job boards which list jobs from entry level through executives, and also has many that you can search by location.
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| TAKE ACTION |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
What does the 2010 Census Mean For You? Why should you, as a person with a disability, participate in the 2010 Census? Maybe because funding for government, community, and social services is tied to the census numbers. The census will help determine how federal dollars are distributed to state, local and tribal governments for programs that benefit people with disabilities and their families. This Census Toolkit for reaching individuals with disabilities has some interesting information.
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RECREATION & LEISURE
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All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
For 25 Years, Therapy on Slopes In rural Montana, they have been teaching high school students with disabilities how to ski, adapting equipment as needed. There is also information on warm weather sports. Read more about this program, from the Flathead Beacon, right here.
Practice Guides Especially for Parents Are you looking for some fun ways to help your baby or preschooler learn and become interested in reading? Check out the Center for Early Literacy Learning ideas for making play time a fun learning time as well. They have ideas for listening, talking, drawing, sound awareness, vocalizing, and lots more.
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| TRANSPORTATION |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Association of Programs for Rural Independent Living (APRIL) Looking for some resources on transportation in rural America? APRIL has a list you might want to check out. APRIL is a membership organization for independent living programs in rural America, but you can access this list as a non-member.
Veterans Grant for Automobiles and Adaptive Equipment If you or someone in your family is a disabled veteran or service member, you could be eligible for up to $11,000 toward the purchase of a car or other form of transportation. There is also money available for adaptive equipment, as well as repair and replacement of equipment. Find out if you are eligible here.
Public Transportation Systems in Your Community Just click on your state and find out what options you have for public transportation in your community.
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| QUALITY ASSURANCE |
All titles and underlined text are hyperlinks. Clicking on them will bring you directly to the web resource described.
Partnerships for Rural Resource Teams: Bringing Best Practices to Children Who Are Deaf-Blind in Montana Program This project is a good example of how technical assistance and resources can help rural children and youth with disabilities - in this case those who are deaf-blind - their families, and school personnel with the intervention, skill development and expertise they may need. Often such specialties are not available at the local level, and this Montana program brings best practices and the latest resources and interventions to localities that need it.
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HOW DID WE DO?
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Too much information? Not enough? Have something you'd like us to announce here? Your input will help us improve. Please feel free to contact the KINews Editor Sherri Coles at familysupport@aed.org or call 877-535-7575.
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Sincerely, The KIN Team  | |
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